PCRC Urges Congress to Provide More Meaningful Access to Medicare, Medicaid, and SCHIP Claims Data
In response to the released discussion draft of the Cures 2.0 legislation, the Physician Clinical Registry Coalition (“PCRC”) submitted a letter to Representatives Diana DeGette (D-CO) and Fred Upton (R-MI) on July 9, 2021, offering recommendations for legislative reform to include in the Cures 2.0 package. Specifically, PCRC requested that Cures 2.0 include language guaranteeing clinician-led clinical data registries access to Medicare, Medicaid, and State Children’s Health Insurance Program (“SCHIP”) claims data for quality improvement, patient safety, and research purposes. Such reforms would allow clinician-led clinical data registries to link their outcomes data with the Centers for Medicare and Medicaid Services’ (“CMS’s”) claims data in a way that would assist in the development of effective alternative payment models and provide a greater understanding of the real-world impact of new medical technologies and therapies across numerous patient populations. PCRC looks forward to working with Representatives DeGette and Upton to ensure that clinician-led clinical data registries have a meaningful way to gain continuous access to Medicare, Medicaid, and SCHIP claims data.